A Letter to My Husband

Dear Husband, We met and married before chronic illness was noticeably affecting my life. I was an athlete and so were you.  We bonded over our mutual love for all things athletic, traveling, and our faith in God.  It was early in our relationship that I found out you could beat me in ping pong, [...]

Mother’s Day

Grief is such a strange animal.  It’s kind of like a cat.  It likes to be left alone most of the time, and then all of a sudden it attacks your legs when you are doing the most normal activity you can think of.  This cat grief really sneaks up on me during pregnancy test [...]

Our Life in Snapshots

Our lives are enriched and deepened by the cluster of memories that make us unique.  As I approach my seventh anniversary with my husband this month, I am overtaken by all the memories we share.  Our life together has been interesting, painful, beautiful and saturated with love.  Welcome to our life together, in snapshots.  Brad, Happy [...]

Joint Hypermobility Syndrome

Though I am not a medical professional, I have been forced to learn way more than I want to know about joint hypermobility and its effects on the ole bod.  Joint Hypermobility Syndrome (Now referred to as Hypermobility Spectrum Disorders and closely akin to Ehlers Danlos Syndrome) is the overarching illness that caused most of [...]

Plans Change: The Saga of Another Upcoming Surgery

Plans are very fickle friends.  No matter how much time is spent nurturing and protecting them, they can turn on the planner in an instant, leaving confusion and discouragement in their changeful wake.  This happens a lot to the chronically ill, and unfortunately, it happened to me again this week. A last-minute plan occurred earlier [...]